What's involved
A researcher will see you at your home (or if you prefer, you can meet the researcher at the university, or another location of your choice). The researcher will make two or three visits over the course of a few weeks, and will:
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Talk with you about your experiences. This interview will be audio-taped to allow us to examine your views in detail. Some of your responses may be quoted when we write reports about the study but no-one will know who said what. It is worth considering that the interview might explore issues that you find upsetting or difficult to talk about, but the researcher will be sensitive to this. You will also be given a contact telephone number, so that you can talk to someone if you still feel upset once the researcher has left.
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Help you to fill in several questionnaires that explore your thoughts and feelings about yourself and your current situation, including your quality of life, mood, and relationships.
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Ask you to carry out some simple tasks that allow us to evaluate your memory, attention, and concentration abilities. These will involve looking at a variety of pictures, patterns and words; listening to stories; answering general knowledge questions; and solving problems.
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With your permission, talk with a family member or someone else who knows you well to find out their views.
After these initial visits, we would like to see you and your relative/friend again after 9 months, and then again after 18 months. The researcher will contact you again to ask if you would be happy to be visited again. If so, the researcher will talk with you about how you are getting on and will ask you to fill in some questionnaires and carry out some memory tasks. These will be similar to the ones you completed initially.
Project email address.